Childrens Services

Percutaneous Endoscopic Gastro-Jejunostomy (PEG-J) discharge for children

This page provides information and advice following the insertion of your child’s Percutaneous Endoscopic Gastro-Jejunostomy (PEG –J). It is important that you are aware of what problems you may experience following discharge and when you should seek advice. You will be shown what to do and told how to get the equipment you need.


After the PEG-J has just been insertedShow [+]Hide [-]

  • To prevent infection, always wash your hands well, before and after touching the tube or after giving feeds and medicines.
  • For the first 14 days clean the skin around the PEG-J tube twice daily using sterile water. Your ward nurse will show you how to do this.
  • Apply a dry dressing if there is oozing from PEG-J site. This will be provided by your GP or children’s community nurse.
  • If the site is inflamed, oozing blood or pus see your GP or children’s community nurse.
  • For two weeks do not let water get in the PEG-J site. Use the shower or have shallow baths.

Care after the PEG-J has been in for longer than 14 days Show [+]Hide [-]

  • To prevent infection, always wash your hands well, before and after touching the tube or after giving feeds and medicines.
  • For the first 14 days clean the skin around the PEG-J tube twice daily using sterile water. Your ward nurse will show you how to do this.
  • Apply a dry dressing if there is oozing from PEG-J site. This will be provided by your GP or children’s community nurse.
  • If the site is inflamed, oozing blood or pus see your GP or children’s community nurse.
  • For two weeks do not let water get in the PEG-J site. Use the shower or have shallow baths.

Fixation plateShow [+]Hide [-]

  • The external fixation plate should be released (noting the number mark on the tube) to access the hole where PEG-J was inserted for thorough cleaning 14 days after the PEG-J is inserted. Your children’s community nurse will show you how to do this.
  • Replace the fixation plate after cleaning in its original position. If your child has gained weight or has a swollen stomach the position may need to be altered slightly.         

Important informationShow [+]Hide [-]

Stop the feed immediately and contact the hospital if:

  • there is a leak of fluid around the PEG-J tube
  • there is pain on feeding
  • there is fresh bleeding. 

Contact details below.

Flushing and feeding via the gastrostomyShow [+]Hide [-]

  • The gastrostomy should only be used for prescribed feed, water or medication.
  • Aspirate the tube before giving anything down it and test the pH of this on pH paper. Your ward nurse will show you how to do this.
  • Make sure the prescribed amount of water (at least 10mls of water) is flushed through tube using a stop/start action after feed and medications.
  • Medicines given should always be in liquid form (as prescribed).
  • Tap water should be used unless otherwise indicated.
  • If tap water is not used, you should use water that has been boiled and cooled to room temperature. This water should be stored in a lidded container/bottle in the fridge for no longer than 24 hours.
  • Unopened bottles of feed may be stored in a cool dark place, away from direct sunlight. Once opened, bottles should be stored in the fridge.
  • Any opened feed that has not been used within 24 hours should be thrown away.
  • A feeding set cannot be used for longer than 24 hours.
  • Keeping your child upright when feeding will help prevent acid coming up from your child’s tummy which could cause pain and also reduce the risk of your child vomiting.
  • Your child should not lie flat for 30 minutes after feeding has finished.
  • If the tube blocks, water (cold or warm) can be used to try and unblock the tube. Use a push/pull action with a 60mls syringe to try and unblock the tube.
  • A smaller gauge syringe can be used to try and unblock a tube – reasonable caution needs to be taken when applying pressure with a smaller gauge syringe to prevent any tube damage.
  • If unable to unblock the gastrostomy tube contact your children’s community nurse for advice on numbers provided.

Flushing and feeding via the jejunostomyShow [+]Hide [-]

  • The only way to check the position of the jejunostomy is with an X-Ray of your child’s tummy. You therefore do not need to check the position of your child’s jejunostomy before using it.
  • You may know it has moved from your child’s bowel if they begin to vomit when they have previously tolerated their feeds. If this happens you will need to contact the hospital immediately for advice.
  • The jejunostomy should only be used for prescribed feed, water or medication.
  • Make sure the prescribed amount of water (at least 10mls of water) is flushed through tube using a stop/start action after feed and medications. If your child is on a continuous feed the jejunostomy should be flushed every four hours as described above.
  • Medicines given should always be in liquid form (as prescribed).
  • You should use water that has been boiled and cooled to room temperature. This water should be stored in a clean jug in the fridge for no longer than 24 hours.
  • Unopened bottles of feed may be stored in a cool dark place, away from direct sunlight. Once opened, bottles should be stored in the fridge.
  • Any opened feed that has not been used within 24 hours should be thrown away.
  • A feeding set cannot be used for longer than 24 hours.
  • If the tube blocks, cool boiled water (cold or warm) can be used to try and unblock the tube. Use a push/pull action with a 60mls syringe to try and unblock the tube.
  • A smaller gauge syringe can be used to try and unblock a tube – reasonable caution needs to be taken when applying pressure with a smaller gauge syringe to prevent any tube damage.
  • If unable to unblock the jejunostomy tube contact your children’s community nurse for advice on numbers provided.

NB It is recommended that 60mls syringes are used when flushing and aspirating the tubes. Cool boiled water is necessary when flushing the jejunostomy but not the gastrostomy.

How to get suppliesShow [+]Hide [-]

Feeds/delivery sets/pump and other equipment

  • When your child leaves hospital you will be given the equipment you need to feed and your nurse will explain how you get equipment in the community. This will  usually be from a home delivery company.
  • If required, a feeding pump will be supplied by the hospital. You will be taught how to use the pump by your nurse on the ward.
  • The GP should send the prescription for the special milk to the company, so that the feed can be delivered each month.
  • If you choose to continue to collect feeds from a local chemist, then the other equipment can still be delivered by the company. 
  • If your child is on a bolus feed discuss with your local community services how this equipment will be ordered for your child.

Waste disposal at homeShow [+]Hide [-]

Ask your community nurse how you get rid of used equipment and any feed that is left.

What to do if you have you any questions? Show [+]Hide [-]

If you have any questions these can be answered by the nurse on the ward. After you go home, these can be answered by your children’s community nurse. It is sometimes a good idea to write them down.

Checklist for healthcare professionals and parents for minimising risk of overnight gastrostomy/jejunal feedingShow [+]Hide [-]

  • The child should sleep in the same room as the parents/carers OR a suitable alarm or monitor should be fitted in child’s room.
  • The child needs to be positioned at a minimum of a 30 degree angle, preferably using a wedge or sleep system as recommended by an Occupational Therapist or Physiotherapist.
  • Feeding regimes should be reviewed regularly as the child grows and develops, especially at the stage where movement during the night is likely to change.
  • The feeding pump should be positioned at the top end of the cot or bed with the giving set threaded through the bars of the cot not dangling over the top.

More information

Contact Details

Monday to Friday between the hours of 9.00am to 5.00pm: Please contact your child’s community nurse or telephone the ward that you were discharged from.

Outside the hours stated above: please telephone the ward that you were discharged from.

For further information

The Patient Advice and Liaison Service (PALS) can offer on-the-spot advice and information about the NHS.

Useful websites

For further information about health conditions and treatment options, youmay wish to have a look at the NHS Choices website. On this website there is an information prescription generator which brings together a wealth of approved patient information from the NHS and charity partners which you may find helpful

PDF leaflet

You can also download the information on this page as a PDF leaflet.pdf

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