Your GP and the hospital teams, especially your key worker, are there to support you and give you information but there are other places you can access information.
If you or your family and friends are looking for additional information or support locally there are Macmillan Information and Support Centres at the NCCC (tel: 0191 213 8611) and the NCOG at the Queen Elizabeth Hospital (tel: 0191 445 2979 – 9.00am – 5.00 pm)
If you have access to the internet the following websites have up to date information that is reviewed regularly by qualified professional:.
If you do not have access to the internet ask at the Macmillan Information and Support Centres at the relevant hospital or your local library to get this information for you. If you need to go regularly for treatment to any of the hospitals mentioned in this information leaflet then please ask for information about any concessions for travel/parking that may be available for cancer patients.
The above websites also have useful travel information including public transport routes and maps for getting around these hospital sites.
Other sources of information and support can be found via your local hospice. The hospice offers a range of services to you and your family in a friendly relaxed setting and we would encourage you to ask your hospital team what they can offer you and your family.
Gynaecological support group “Caring Together” is a support group for women who have had any gynaecological cancer. Nurse specialists attend the group meetings and can offer support. Peer support is also available. The session is held on the first Monday afternoon of each month in the Colposcopy clinic at the Queen Elizabeth Hospital Gateshead between 2pm – 4pm. For more information please contact either Helen Manderville or Alison Guest via the Queen Elizabeth Hospital switchboard 0191 482 0000.
What other services are available to me and my family?
It is not only doctors and nurses in hospital that are involved in your care, but many other health and social care professionals can be called upon, including district nurses, Macmillan nurses and hospice staff. Support will be offered to you throughout your care from hospital and community staff. If you feel unsure about anything, you can contact your specialist nurse/key worker who with your consent can plan your care with the relevant staff and services.
What happens if I am having problems with money?
The Macmillan Information and Support Service can provide access to information to support you with any financial worries you might have. They can also offer one to one expert advice and support on benefits and related financial issues. Cancer often causes money worries in unexpected ways, eg larger heating bills, the need for new clothes due to weight loss/gain or having to give up work, even if it is only for a while.
If you normally pay for your prescriptions, once you have a confirmed diagnosis of cancer, you can get an exemption certificate for your prescription charges. Your GP can supply you with an exemption application form (FP92A) Spiritual Support Being faced with a serous diagnosis, or the possibility of one often gives rise to people questioning any faith they might have, or seeking answers to questions they may not have thought about before. You might find that you want to talk to someone who might understand these thoughts and feelings and your local church or faith group may be able to offer you some support close to your home.
If you are offered surgery locally you can ask to have someone from the Hospital Chaplaincy Team visit you. The team consists of people from various faiths and denominations with the aim of promoting the spiritual well-being of everyone in hospital. The Chaplains are not notified when you are in the hospital, you will need to ask for their support.
Cancer Research and Clinical Trials
As part of your ongoing care you may be approached about a clinical trial. Clinical trials in cancer look at new drugs or a combination of drugs, new ways of giving treatment, or tests looking at the genes involved in cancer. Research is needed to improve current cancer care and find treatments with fewer side effects.
Clinical trials are carefully planned by scientific methods, which follow a protocol (study plan). This is designed to provide a clear answer at the end of the research. Individual trials may ask for people to join that have a certain type of cancer or stage of disease – this is called “eligibility criteria”. A trial may ask for extra blood tests, x-rays or monitoring during treatment.
Choosing to take part in a clinical trial can be a difficult decision so you will be given time to read through an information sheet and you are encouraged to discuss any study with your hospital team as well as your GP and your family.
It is important that you feel comfortable about taking part in a clinical trial. You will receive the best possible care, whether you choose to participate in a trial or not.
You may have heard that certain cancers can run in families. Your hospital team will talk to you about the risks but if you or your family have any questions about this, your hospital team will be more that happy to discuss this with you.
Hospital car parking and transport arrangements
There is patient and public car parking provided on all of the hospital sites. As car parking charges and arrangements often change, we suggest that you check on the Trust websites for the most up to date information.
You can also download a PDF version of the information on this page.pdf