Northern Genetics Service

Newcastle Muscle Centre

Contact: (0191) 241 8600 - Professor Kate Bushby, Director of Newcastle Muscle Centre

The Newcastle Muscle Centre at the Institute of Genetic Medicine is one of three centres in England for the diagnosis and management of inherited muscle diseases supported by the British Muscular Dystrophy Campaign.

Muscle Clinics

The muscle team runs clinics for children and adults throughout the North of England. The main base for the children's clinic is The Great North Childrens Hospital at the Royal Victoria Infirmary in Newcastle. For adults, the main clinic base is the Northern Genetics Service at the International Centre for Life.

Children's clinics are also held at a range of other locations throughout the region, in conjunction with local physiotherapists and other local staff. In addition to the clinics at the International Centre for Life, adult clinics are also held in James Cook University Hospital, Middlesbrough and the Central Clinic Carlisle. We try to ensure that all clinics are multidisciplinary and attended by all members of the team.

National Commissioning Group Service for Rare Neuromuscular Disorders

In addition to the paediatric and adult clinics for people living in the Northern region of England, we have the possibility to offer appointments to people from all over the country in whom a diagnosis of limb-girdle muscular dystrophy (LGMD) is suspected. 

Newcastle leads the National Commissioning Group (NCG) for rare neuromuscular disorders, and is specifically responsible for the LGMD diagnostic and advisory service. People with a suspected diagnosis of LGMD can be seen, or have muscle or DNA sent for analysis here. We require some clinical information about patients before accepting referrals. 

Contact us

For a copy of the information pack, which includes dispatch instructions for sending muscle biopsies and DNA samples, and copies of the pre‑referral forms please contact the service administrator: 

Ms Susan Robinson
NCG Administrator
Muscle Immunoanalysis Unit
Lower Ground Floor
Dental Hospital
Richardson Road
Newcastle upon Tyne, NE2 4AZ

Telephone:        (0191) 282 0841
Fax:                    (0191) 222 5227


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